Privacy Policy
Last updated: February 9, 2026
Hidradenitis & Me is committed to protecting your privacy and handling personal information with care, respect, and sensitivity. We understand that many people who engage with our organization may be sharing personal or health-related experiences, and we take that responsibility seriously.
Information We Collect
We may collect personal information when you:
Fill out a contact form
Subscribe to our newsletter
Submit a healthcare provider listing or feedback
Register for events or support groups
Contact us by email or other means
This information may include:
Name
Email address
Location (city/province or postal code)
Any information you voluntarily share in a message or form submission
We do not require medical details, but you may choose to share personal or health-related information. Any such information is provided voluntarily.
How We Use Your Information
We use the information you provide to:
Respond to inquiries and messages
Provide updates, newsletters, or resources you’ve opted into
Improve our programs, services, and website
Maintain directories or community resources (with consent)
Communicate about events, support groups, or initiatives
We will never sell or rent your personal information.
Health-Related and Sensitive Information
If you choose to share health-related or sensitive information:
It is treated as confidential
Access is limited to authorized volunteers or leadership
It is used only for the purpose you intended
We encourage you to share only what you are comfortable with.
Consent
By submitting a form on our website, you consent to the collection and use of your information as outlined in this Privacy Policy.
You may withdraw consent at any time by contacting us.
Information Sharing
We do not share personal information with third parties except:
When required by law
When necessary to operate essential services (e.g., email platforms), and only with providers that follow appropriate privacy standards
Data Storage and Security
We take reasonable steps to protect your information using secure platforms and restricted access. While no system is 100% secure, we strive to safeguard your data from unauthorized access, misuse, or disclosure.
Your Rights
You have the right to:
Request access to your personal information
Request corrections
Request deletion of your information, where applicable
To make a request, please contact us using the information below.
External Links
Our website may contain links to external sites. We are not responsible for the privacy practices of those websites.
Changes to This Policy
We may update this Privacy Policy from time to time. Any changes will be posted on this page with an updated date.
Contact Us
If you have questions or concerns about this Privacy Policy or how your information is handled, please contact us at info@hidradenitisandme.ca