HS 101

The Basics

This guide introduces the basics of hidradenitis suppurativa (HS), including symptoms, causes, and how the condition is commonly managed.

What is Hidradenitis Suppurativa?

Hidradenitis suppurativa (HS) is a chronic inflammatory skin condition that causes painful lumps, abscesses, tunnels under the skin, and scarring. These symptoms most often appear in areas where skin rubs together, such as the armpits, groin, buttocks, inner thighs, and under the breasts. HS can significantly reduce quality of life for those with the condition.

 

How Common Is HS?

HS is more common than many people realize.

  • Globally, millions of people are affected.

  • In Canada, estimates suggest hundreds of thousands to over one million people may live with HS.

  • Some studies estimate that up to about 3.8% of Canadians may have HS.

Because HS is frequently misdiagnosed, the true number may be higher.

Common Symptoms of HS

HS symptoms can vary from person to person, but commonly include:

  • Painful lumps under the skin

  • Abscesses that fill with pus

  • Drainage or leaking from lesions

  • Tunnels under the skin (called sinus tracts)

  • Scarring over time

  • Recurring flare-ups in the same areas

HS often begins with small tender bumps that can grow larger, break open, and recur repeatedly.

Where HS Usually Appears

HS most commonly occurs in skin-fold areas, including:

  • Armpits

  • Groin

  • Inner thighs

  • Buttocks

  • Under the breasts

These are areas where hair follicles and sweat glands are concentrated and where skin friction is common.

HS can appear in other areas, too. The only real exception are the palms of the hands and the soles of the feet.

How HS Is Diagnosed

HS is usually diagnosed by a healthcare provider based on:

  • The appearance of lesions

  • Where the lesions occur on the body

  • Recurring symptoms over time

There is currently no single lab test that confirms HS, which is one reason diagnosis can be delayed.

Many patients are initially told they have boils, infections, ingrown hairs or acne.

Seeing a dermatologist familiar with HS can help ensure proper diagnosis and treatment.

 

Understanding HS Severity (Hurley Stages)

Doctors often use the Hurley staging system to describe HS severity.

Stage 1 – Mild
  • Individual lumps or abscesses

  • No tunnels

  • No extensive scarring
Stage 2 – Moderate
  • Recurrent lesions

  • Development of tunnels under the skin

  • Scarring in affected areas

Stage 3 – Severe
  • Widespread inflammation

  • Multiple interconnected tunnels

  • Extensive scarring

Treatment Options for HS

There is currently no cure for HS, but many treatments can help control symptoms and reduce flare-ups. Doctors may combine medical treatments with surgery depending on disease severity.

Check out our resource on accessing treatments.

Topical Treatments
  • Antibiotic creams or washes

  • Antiseptic cleansers

  • Steroid injections into inflamed lesions

Oral Medications
  • Anti-inflammatory antibiotics

  • Hormonal treatments in some patients

  • Pain management medications

Biologic Medications

For moderate to severe HS, doctors may prescribe biologic medications that target the immune system.

These are available in Canada:

  • Humira (adalimumab) and biosimilars
  • Cosentyx (secukinumab)
  • Bimzelx (bimekizumab)
Surgical Treatments

Procedures may include:

  • Drainage of abscesses

  • Deroofing (opening tunnels)

  • Removal of affected tissue

Living with HS

HS can affect more than just the skin. Many people experience:

  • Chronic pain

  • Fatigue

  • Emotional stress

  • Social isolation

Research shows HS can significantly impact quality of life, making emotional and community support important parts of care.

When to See a Doctor

If you experience recurrent painful lumps in skin-fold areas, especially if they return repeatedly or drain fluid, consider speaking with a healthcare provider or dermatologist.

Early diagnosis and treatment may help reduce complications and improve long-term outcomes.

You Are Not Alone

Living with HS can be challenging, but support and treatment options are available.

Connecting with others who understand HS can make a meaningful difference.

👉 Learn more about our support groups.

 
This resource hub is made possible through sponsorship by UCB.
All content has been independently curated and developed by the HS & Me team.
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