Hidradenitis & Me Support Group

Battling the
Quiet Storm

You are not alone in your Hidradenitis Suppurativa journey. We provide compassionate support, resources, and community for those living with HS and their caregivers.
What We Do?

Supporting those Living with Hidradenitis Suppurativa

*We are an Canadian patient advocacy organization but no matter where you are in the world you are welcomed to join our support groups.

Hidradenitis Suppurativa is a chronic skin condition affecting 4% of Canadians, often misunderstood and misdiagnosed for years. We support Canadians living with hidradenitis suppurativa through community, resources, and compassion.

Our Mission

Empowering HS warriors through shared experiences and building a compassionate community together.

We Stay Updated on Latest Studies

Access the latest research, new findings, and medical perspectives with us.

Community Insights

Understand self-care practices and lived experiences from the HS community.

Our Services

What We Offer

We provide comprehensive support through multiple channels to help you navigate your HS journey.
Monthly Support Groups

Safe, confidential online meetings for sharing experiences and finding connection.

Educational Resources

Reliable information to help you understand and manage HS.

Community Events

Awareness initiatives and community connection opportunities across Canada.

Who We Are

Our Shared Values

We believe in creating a supportive environment that empowers individuals and recognizes the strength of lived experience.
Understanding Hidradenitis Suppurativa

What Should You Know?

Hidradenitis Suppurativa (HS) is a chronic inflammatory skin condition affecting about 4% of Canadians. Often misunderstood and misdiagnosed, it leaves many feeling alone in their journey. We’re here to walk this road with you.
Recognize
the Symptoms

HS appears as recurrent, painful boils, often in the armpit, groin area or breasts, that can lead to scarring and tunneling under the skin

Challenges of
Misdiagnosis

Many individuals endure years of misdiagnosis, leading to unnecessary suffering and delayed treatment. Early diagnosis & treatment is key to preventing further suffering.

Dispelling
Common Myths

HS is not your fault. While lifestyle changes can help manage symptoms, HS is not caused by poor hygiene or bad habits.

Managing
Treatments

While there's no cure yet, treatments can reduce pain, inflammation and flare-ups. Option include medications, therapies & surgeries.

Subscribe to our news letter to receive the latest news, events, community stories, and updates that support your journey with HS.

Stay Connected