"Hidradenitis & Me Support Group" allows a safe space for those with HS to express their struggles, connect with others who have HS, as well as to obtain further knowledge, help bring awareness, and best of all SELF-CARE!
Self-care is the number one goal of this support group and to understand that HS is a part of you, NOT who you are! Please join me and start your healing process of ending your quiet storm mentally and emotionally, you are NOT alone!
It doesn't matter where you are. We have connected with people right in our region in the GTA and we have connected with those in other cities and countries. We will make time for you. Even if you don't feel like talking in front of a group, you can always just listen and we are always open to having one on one time with you.
HS is a chronic inflammatory skin condition described as painful inflamed lumps that can start as small as a pea and grow larger in size. HS can affect both male and female in one or other areas of the body generally consisting of the armpits, groin, buttocks and breast area. These lumps often take time to heal and often require medication/other treatment options to help manage new and reoccurring flares. Lumps can be painful, drain fluid, form tunnels and cause scarring of the surrounding tissue under the skin. HS can affect one’s life not only physically but mentally and emotionally as well.
That about 4% of Canadians are living with HS and most likely don't know they have it. People with HS are often diagnosed late or misdiagnosed due to lack of knowledge. HS is not easy to deal with and often people keep quiet about their condition. Research suggest that Hidradenitis Suppurativa can start as early as puberty and can effect both men and women.
Did you know?
That scientist and doctors are still unsure of the cause of HS but research shows that inflammation, sweat glands, hormones' and the hair follicles play a major role. Research also suggest that HS is in fact hereditary and can be passed along through your family genes.
Currently in Canada HS can be managed with different methods (medical and surgical) but with every medication and surgical procedure it's effectiveness will depend on the individual, how their body responds to treatment and the stage of your HS may also play a factor. Known HS treatment options include.
Treatment options will be specific to the individual. Speak to a dermatologist about how to best manage your HS.
Rest is important or you can aggravate your HS even more by raising your stress hormone levels.
There are many different ways to open up about HS. We will help you get there.
Join our support group session to get familiar with dermatologist who might be in your area and is well informed about Hidradenitis Suppurativa
Medical Disclaimer
Information provided via website or through the support group does not substitute for medical advice. For any medical concerns or questions please contact your doctor. "Hidradenitis & Me" support group is not responsible for any medical decision and we encourage you to contact your medical provider.
My name is Latoya, I am a child and youth worker who specializes in mental health. I have had HS for over 17 years, I have been through my share of medical treatments and multiple surgeries. Due to my experience with HS especially with my most recent surgery, I have grown the desire to bring more awareness to HS. I have created "Hidradenitis & Me" support group as a step to allow ourselves to begin to heal, take our life back, and to end the quiet storm of feeling alone through our journey.
My name is Chevonne. I’ve had HS since 2017. On my worst days, I would pray for better ones, and now that I have them, I’ve vowed to never forget where I’ve come from, or how low I’ve been. For a long time, I was too embarrassed to talk to anyone about my experience with HS. Now, I’m happy to be apart of Hidradenitis & Me, where we are building a community of HS Warriors who support each other in every aspect of living with HS, from wound care to self-care, and everything in between.
To the world I am a child care Supervisor and ECE Educator but on the inside I am a conqueror, over-comer of many life battles but most of all, I am an HS warrior. I have been a warrior since I was 17 years old. I know the mental, physical and spiritual exhaustion of always trying to play superwoman. Someone who looks strong on the outside but constantly fighting tiring battles on the inside. Sometimes we have to take off our cape and masks and really take care of ourselves. This is why I am honored to be apart of Hidradenitis & Me Support Group, to help others spread positive vibes back into our life.
Sherona Thompson holds a certificate in Business administration from the University of Technology Jamaica and a Bachelors of Arts degree in Sociology. She is known to serve within her community, a past member of a local women’s group previously called “sister in Praise”. She is an active member of Life Changers Christian Ministries and Holds the tile of youth president as well as serve on the usher board. In all that Sherona is known for her witty behaviour and selfless heart.
I have been an outreach coordinator for several years with my home church. I have a passion for helping others within the community providing support to homeless shelters, food banks etc. My interest in HS comes from being a parent to, two daughters who have been diagnosed with Hidradenitis Suppurativa. I believe this illness not only affects those with it but also the people who are supporting them.
"Hello, I am Becky from Toronto, ON! I got diagnosed with Hidradenitis Suppurativa Hurley stage 1&2 in Jan 2020, however I had symptoms since about 2014. My hobbies include watching Netflix, hanging out with my friends & family and enjoying nature."
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