At Hidradenitis and Me Support Group, we are dedicated to supporting individuals living with Hidradenitis Suppurativa (HS) and their caregivers. Our mission is to provide a safe, inclusive space where people can come together to share their experiences, discuss challenges, and exchange tips, techniques, and lifestyle changes that have worked for them.
We believe in the power of community and self-care. Through our support groups, we encourage attendees to embrace the things they love, find joy, and take care of themselves — because living with HS doesn’t define who you are.
Our motto, "HS is not who you are, it's just a part of us!", reflects our commitment to helping everyone see beyond their condition and live life to the fullest.
While we are based in the Greater Toronto Area in Ontario, Canada, hosting support groups virtually allows us to connect with people all over the world. Everyone is welcome.
Join us monthly to connect, share, and grow in a community that understands and supports you.
Hidradenitis Suppurativa (HS) is a chronic skin condition characterized by painful lumps, abscesses, and tunnels (sinus tracts) that typically form in areas where skin rubs together, such as the underarms, groin, buttocks, and under the breasts. These lumps can become inflamed, infected, and may leak fluid or pus.
HS is not contagious, and its exact cause is not fully understood. The condition can significantly impact a person's quality of life, but various treatments and self-care strategies can help manage symptoms.
Hidradenitis Suppurativa (HS) affects approximately 3.8% of Canadians, equating to over 1 million individuals. This prevalence is notably higher than global estimates, which range from 1% to 3%.
Despite its relatively high occurrence, HS is often underdiagnosed or misdiagnosed, leading to delays in appropriate treatment. Raising awareness and understanding of HS is crucial for early diagnosis and effective management, and we fully support these initiatives. We even lead some of our own!
Treatments for Hidradenitis Suppurativa (HS) aim to manage symptoms, reduce inflammation, and prevent flare-ups. The best treatment plan varies depending on the severity of the condition. Here are some commonly used treatments:
Treatments are most effective when tailored to the individual and often require collaboration between dermatologists, surgeons, and primary care providers. Speak to a dermatologist about how best to manage your HS.
Medical Disclaimer
The information provided on this website or through the support group does not substitute for medical advice. For any medical concerns or questions please contact your doctor. Hidradenitis & Me Support Group is not responsible for any medical decisions and we encourage you to contact your medical provider.
My name is Latoya, I am a child and youth worker who specializes in mental health. I have had HS for over 17 years, I have been through my share of medical treatments and multiple surgeries. Due to my experience with HS especially with my most recent surgery, I have grown the desire to bring more awareness to HS. I have created "Hidradenitis & Me" support group as a step to allow ourselves to begin to heal, take our life back, and to end the quiet storm of feeling alone through our journey.
My name is Chevonne. I’ve had HS since 2017. On my worst days, I would pray for better ones, and now that I have them, I’ve vowed to never forget where I’ve come from, or how low I’ve been. For a long time, I was too embarrassed to talk to anyone about my experience with HS. Now, I’m happy to be apart of Hidradenitis & Me, where we are building a community of HS Warriors who support each other in every aspect of living with HS, from wound care to self-care, and everything in between.
To the world I am a child care Supervisor and ECE Educator but on the inside I am a conqueror, over-comer of many life battles but most of all, I am an HS warrior. I have been a warrior since I was 17 years old. I know the mental, physical and spiritual exhaustion of always trying to play superwoman. Someone who looks strong on the outside but constantly fighting tiring battles on the inside. Sometimes we have to take off our cape and masks and really take care of ourselves. This is why I am honored to be apart of Hidradenitis & Me Support Group, to help others spread positive vibes back into our life.
Sherona Thompson holds a certificate in Business administration from the University of Technology Jamaica and a Bachelors of Arts degree in Sociology. She is known to serve within her community, a past member of a local women’s group previously called “sister in Praise”. She is an active member of Life Changers Christian Ministries and Holds the tile of youth president as well as serve on the usher board. In all that Sherona is known for her witty behaviour and selfless heart.
I have been an outreach coordinator for several years with my home church. I have a passion for helping others within the community providing support to homeless shelters, food banks etc. My interest in HS comes from being a parent to, two daughters who have been diagnosed with Hidradenitis Suppurativa. I believe this illness not only affects those with it but also the people who are supporting them.
"Hello, I am Becky from Toronto, ON! I got diagnosed with Hidradenitis Suppurativa Hurley stage 1&2 in Jan 2020, however I had symptoms since about 2014. My hobbies include watching Netflix, hanging out with my friends & family and enjoying nature."
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